Looking for advice from your past experiences

by Lindsay
(Columbia, TN)

Probable endometriosis been mis-diagnosed as Crohn's disease

I have not been diagnosed with endometriosis, but have a suspicion that it could be my problem. Let me tell you a bit about what I've been through.

I'm 25 and for the past two years I've been to what feels like dozens of doctors in search of the cause of pain. I get severe headaches (those began years ago) and a terrible pain in my right abdomen and lower back. It seems to be getting worse and now the pain has spread to my upper abdomen.

The pain increases when my bladder is full, also when I have a bowel movement. My life also becomes miserable for about two weeks every month right before my period.

The only thing doctors have been willing to look for is Crohn's disease, and since they found a small section of intestine inflamed they won't consider anything else.

I'd be willing to consider that if I had symptoms that reflected Crohn's but I don't, other than the inflammation they found.

I do have a family history of endometriosis. My mother had it.

Has anyone else been misdiagnosed with Crohn's disease or has inflammation from endometriosis?

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