Endometriosis you are not alone.

by Emily
(San Marcos, CA )

I am a 21 year old female and I was diagnosed with endometriosis and interstitial cystitis or IC in 2010 through an exploratory laparoscopy.

I went through years and years of agony and horrible periods without any answer from my doctors. No one could understand what was wrong.

I had cat scans, MRIs, ultrasounds, you name it but there is no proof that endometriosis can always be seen on those tests.

My doctor finally agreed it was time for surgery. I have even been told by a doctor that I was crazy and all the symptoms were just in my head. This was vindication for the months I spent in bed writhing in agony every day and for all the people who didn't believe me.

My doctor found a lesion on the back of my uterus or my cul de sac which explains all the lower back aches I had been feeling. This lower back pain was unlike any muscle cramps, it was inside and drove me nuts.

My doctor also found some other lesions and got rid of them. My bladder was covered in haemorrhages which is consistent with IC.

After the surgery I had months of relief which was wonderful. Of course the symptoms came back eventually. I suffer from chronic lower back pain, overall abdominal pain, horrible periods, bladder urgency, as well as IBS.

I am now on the lupron depo injection which is nice because it took away my periods but I still suffer from pain.

I understand how it feels to be trapped in your own body. People are not understanding of these diseases because it is hard to explain to someone what it feels like unless they have felt it themselves.

There are many days that I cry and feel down because I don't see an end in sight. But I try to remember that I am alive and that I can get through this. I do have a good life and loving people in it who do support me. Ignore the people who don't support you, you don't need those type of people in your life.

I want to raise awareness of these diseases and I want to say to all the other women out there who feel hopeless and lost, that you can do this!

You are beautiful and strong, stronger than you think. Don't give up. There are many others out there who do know how you feel and you are NOT alone.

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