Will I ever get my life back?

by Myia
(Snellville, GA USA)

Hello everyone! I am 31 years of age and I have been dealing with this for as far back as I can remember! I cannot tell you how many doctors I have seen dealing with this pain.

Everyone said that I had cysts and that was the root of my pain but I just recently found out that it was not true. I went to one doctor about 5 years ago who said that I definitely had endometriosis but the only way that I could get any relief was that if I lost weight.

I thought that was just horrible, dealing with the pain that I was experiencing. But doing what I was told, I lost about 45 pounds and still continued to have very severe pain.

This year, I became mentally unstable and thought that I was unable to continue living like this! After my mother and husband convinced me to hang in there and to try yet another doctor, I finally found one that believed in my pain and told me that he would do everything that he could to help me get over this.

He gave me Percocet for the pain and he performed a Laparoscopy to find out if it was endometriosis for sure and sure enough, it was! He said that I had a lot of it and he burned a lot of them and he felt I would surely get better but unfortunately I did not!

I went to the next doctor's visit and cried to him begging him to just take everything out of me! I am suicidal, my life is so dark and it is definitely affecting my children, my husband and my mother and sister and they pretty much take turns around the clock to be with me for support, and I really appreciate it but nothing is working as of right now.

My doctor told me that because most of my pain is only on the right side, he said that if it came down to it, he would just take my right ovary out and my uterus and hopefully it will help eventually!!!

I went to the doctors office this morning and he gave me an injection of Lupron and says that it supposed to help but it will get worse before it gets better and honestly, I can't imagine what my life is going to be like over the next few weeks.

He keeps prescribing me Percocet and it does not work!! I am going to become a junkie and still dealing with the pain! I pray about this so much and I feel like I haven't done anything to deserve this pain, I don't know why this is happening to me and before now, I didn't know that this was as common as it is!

I really hope that all of us gets better soon before we do something stupid which we will regret! I am praying for us all and hopefully there will be a better answer soon!!!

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Apr 29, 2016
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Hope?
by: Sarah

Our disease is terrible and only we can understand how much it steals of our lives. Do not let it win! You must fight through your dark days. You must fight for yourself and for your family.

You must try another surgeon who is a specialist that can excise the endo...not just ablate. I am 34 and will be having my 4th surgery on Monday. My new doctor is going to excise the adhesions and...here's the exciting part...perform a Presacral Neurectomy. Please google it.

This nerve cut will hopefully block all pelvic pain. I now have hope and am passing it along to you. I will be able to let you know (or any other reader) if this procedure gives me my quality of life back.
Feel free to email me. lovely82roses@gmail.com
Sarah

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