Mother completely cured by radical hysterectomy

by Allannah
(Melbourne, australia)

A rare case where hysterectomy was really needed for endometriosis

In a lot of cases hysterectomy does work. My mother is one of those such cases. She had very severe endometriosis, so much so that she was bedridden for four years. The doctors thought that she had leukaemia as her red cell count was so low.

She had to have iron infusions every two weeks. In the end she bled right through the month. They finally discovered endometriosis via a pelvic scan. The disease had spread to her bowel.

Within a week she was in hospital having a radical hysterectomy. She was 39 years old. They took everything and scraped the bowel.

Afterwards she was thrust straight into menopause and it took two years to find the right HRT. However, she has never looked back.

Her immune system improved dramatically, she has no pain, no other side effects whatsoever. The surgery saved her life. She is now 65 years old and counts the hysterectomy as one of the best things she ever did.

She is not alone. I worked with lots of women with endometriosis and of those who have had partial or total hysterectomies, they all say it improved their health dramatically.

Being a yoga teacher surgery has not been my first option, but I believe there has to be a sense of balance when women are presented with their options. Namaste

Comments for Mother completely cured by radical hysterectomy

Average Rating starstarstarstarstar

Click here to add your own comments

Oct 24, 2015
Rating
starstarstarstarstar
Endometriosis without ovaries
by: Lori

I had my ovaries and fallopian tubes removed in 2001 and 2002 due to cysts. I have been on HRT ever since. The dr. discovered endometriosis while they were in there and I have never thought much about it again, until recently. I have had severe back and sciatica pain for over 3 years now.

I do have low back issues and have had injections 7 times, PT, Chiropractor, and Acutherapy with no pain relief. Also, I have had bleeding off and on for a couple of years. The bleeding has become monthly and lasts for about week. I have had ultra sounds, a D and C and have just recently changed my hormone patch. My symptoms increased dramatically (including my back pain).

I recently saw a neurosurgeon for my back issues and he was not convinced that my pain is being caused by my bulging disc or other back issues I have and refuses to operate on my back. So now I'm thinking the two issues are linked and have been researching endometriosis. I have been told to stay completely off the hormones and am having blood work in a couple weeks to check my hormone levels.

I am almost 46 years old and am not opposed to staying off hormones and going through menopause. My pain has been so life altering that I actually hope there is endometriosis and that surgery and menopause will help me.

Oct 12, 2014
Rating
starstarstarstarstar
Running out of options
by: wore out

I've suffered with endometriosis for over 15 years. Because of hearing horror stories about hyterectomies gone wrong, I did not do anything about the progression of the disease until five years ago. I did nine months of Lupron after laparoscopy where I was already diagnosed at stage 3.

Don't know why I took so many doses of Lupron. Came back with a vengeance after that. I was told that the endometriosis was deeply embedded into the rectum at that time. Went three more years in misery with bladder involvement as well. Nerves also damaged.

Went to new doctor, had a partial hysterectomy last year, as I had severe adenomyosis and calcified fibroids, kept ovaries. By now my rectum is fused to the back of the cervix (which was left in). Had another laparoscopy a few months ago. Tons of scar tissue. Bowels are roached. Excruciating pain every month. The area in rectum that has it, is buried behind the scar tissue.

The surgeon has tried to convince me to remove ovaries also. I've stubbornly refused, thinking that I could maybe change my diet and somehow make it straighten up. WRONG! Cutting out the endo lesions now would mean cutting out my entire rectum and risk more nerve damage. Was advised that I could be in worse shape with a possible coloscopy bag afterward.

I'm going back in to remove my ovaries. Not even interested in replacement hormones at this time. My pain is cyclical which makes me believe that no hormones = no more pain. I'm fifty years old, now. I've been through enough misery. I'm running out of options because I waited far too long to fix the problem and had doctors that were not knowledgeable.

At this point, I don't even care about losing my ovaries. Scaring women with stories about hysterectomies is not wise, as it could make people run from the issue, like I did. When the disease is too far along, you run out of options.

Aug 02, 2014
Rating
starstarstarstarstar
not believing
by: Anonymous

I hear so many bad things about endometriosis coming back after a hysterectomy I don't think I could get one right now ...all my life any hope given about anything was always crushed so I think this would be the same, as it is rare that it ever goes away completely

Aug 02, 2014
Rating
starstarstarstarstar
Not believing
by: Anonymous

I hear so many bad things about it coming back after a hysterectomy I don't think I could get one right now ...all my life any hope given about anything was always crushed so I think this would be the same as it is rare that it ever goes away completely

Jul 02, 2014
Rating
starstarstarstarstar
Endometriosis and Adenomyosis
by: Sonya

Thank you so much for all of the comments. I am struggling at 47 with Endometriosis and adenomyosis after 3 surgeries (9cm endometrioma on left ovary, laporascopy, and endometrioma on ileiocecal valve.) See specialist in a couple of weeks and thinking I may be headed to a hysterectomy. You hear alot of negative and not alot of positive.

May 05, 2014
Rating
starstarstarstarstar
30 years and counting...
by: Lisa

Thank you all so much for your comments. I just scheduled a hysterectomy for the end of this month.

I have tried, eastern medicinal treatments, western medicinal treatments, throwing my body into full blown menopause (talk about crazy), putting my body into a pregnancy state. I have adopted, and gone through in vitro.

I am an extremely active woman, but always seem to be ill, or down for the count for a week out of the month. I have never had a doctor tell me that endometriosis can decrease your immune system until today. I cried, because I thought I was doing something wrong, even though I eat healthy, run, bike, swim, take my multi's...I just couldn't figure out what else I was doing wrong...so, I am hoping this will be the blessing to stop the madness!

Apr 12, 2014
Rating
starstarstarstarstar
thank you
by: tranquilessence

Thanks for sharing some positive results of a full hysterectomy. At 36 I have been suffering with endo on and off for all of my reproductive years.

I am a Doctor of Traditional Chinese Medicine and have done so much alternatively to keep it in check. Western meds do not work for me. (or those around me who when I go crazy..lol)

Surgeries have helped but also cause more scar tissue and as we all know it grows back. Gratefully I have 2 beautiful children and lots of family support. I feel at a crossroads and am looking to a full hysterectomy this summer.

I am hoping by continuing on a path of alternative medicine I can balance out the negative side effects of menopause and hysterectomy side effects.

I have to tell you though it is so frightening and I am sick of feeling like a failure! I am grateful for the lessons this disease has taught me but I'm over it lol!

Apr 04, 2014
Rating
starstarstarstarstar
Worked for me too!
by: Lori

It worked for me too. I had my total hysterectomy at at 34 and did not take hormone replacement therapy. I exercise, lift weights, eat healthy and take lots of calcium and vitamin D! And instead of getting pregnant, we adopted an amazing little girl. She is now 6 years old.

Sep 17, 2013
Rating
starstarstarstarstar
Thank you
by: Anonymous

It is very confusing dealing with endometriosis and adenomyosis as there are so many variant options and opinions out there. I am on year 17 of dealing with these issues and am scheduled for hysterectomy next week.

Also a yoga instructor and LMT who has looked for alternatives along the way. Sometimes surgery is just the best option for the individual. Praying it ends up that way for me.

Click here to add your own comments

Join in and write your own page! It's easy to do. How? Simply click here to return to Your hysterectomy experience.




Follow us on Facebook

Recommend on Google+