Endometriosis story


  These stories can help other women so they do not feel so alone when trying to cope with effects of this disease.





Lots of symptoms

by Monica
(Virginia Beach, VA)

I was "diagnosed" with endometriosis by a doctor who simply was doing a vaginal exam for constant, horrible cramps linked to menstruation. He said he felt a mass, and immediately said it was endometriosis.

I'm not comfortable with this diagnosis and have an appointment with a different doctor to confirm or re-evaluate. To me, feeling a mass in a patient and not being curious about it or taking a biopsy or anything seems a bit....odd.

I have tons of symptoms - I've always (since menstruating at age 9) had horrible gas symptoms while menstruating, and bowel movements that would leave me crippled. More recently, normally on the first day of my periods, I get horrible aches in the groin muscle of my right leg that renders my leg virtually useless - even limping causes so much pain that I'd rather just lay down.

I have had multiple trips to the ER with crippling symptoms on the right side of my abdomen - each time they simply say it is a UTI and send me on my way. The antibiotics do not stop the problem, however, and they are recurring.

I now have a swollen abdomen, and my periods are drastically affected. Both of my two previous periods have been extremely light and almost completely devoid of pain. However, I look a few months pregnant and have been urinating a lot.

All pregnancy tests are coming back negative, both urine and blood tests. I'm starting to get very scared about everything that's going on. I am starting to have cases of vomiting and a lot of diarrhoea occurring, and things seem to be getting out of hand.

The soonest appointment I can find at most OB-GYNS in the area is a month out or more. Also starting to get chronic headaches. Any advice that can help alleviate symptoms until I can be seen?

Still struggling to pay for my last visit to the ER and hoping I don't have to do it again, as they never do diagnostic testing, just treating the symptoms and sending me home.


COMMENTS

Name: Dianne

Title:Unanswered Questions


Keep checking, go to different dr.'s, don't stop. I moved from VB to the Mountains, it takes up to 4 months to see a doctor here. Luckily, I hope, there is a gyn here that actually had a great write up and is a 5 star GYN that I can hopefully get answers to.

I have had so many weird pains and they keep sending me to Gastro. I just read all the symptoms here on these pages and maybe it's just the cysts on my ovary and endometreosis. Wouldn't that be a fluke after years of suffering.

Prayers with you all and for answers for me tomorrow. Good luck with your search for a Dr. have you tried the health department?

Keep checking, go to different dr.'s, don't stop. I moved from VB to the Mountains, it takes up to 4 months to see a doctor here. Luckily, I hope, there is a gyn here that actually had a great write up and is a 5 star GYN that I can hopefully get answers to.

I have had so many weird pains and they keep sending me to Gastro. I just read all the symptoms here on these pages and maybe it's just the cysts on my ovary and endometreosis. Wouldn't that be a fluke after years of suffering.

Prayers with you all and for answers for me tomorrow. Good luck with your search for a Dr. have you tried the health department?



Name: Anonymous

Title: Secondary Endometriosis Symptoms


My sympathies re your symptoms. One thing I would just like to make you aware of is the secondary problems that Endometriosis can cause which might be the source of some your problems. My endo blocked off my urether causing immense pain and ultimately kidney damage over a period of months.

The damage caused by the blocked kidney was quite extensive and I needed a lot of abdominal surgery as a result. I went undiagnosed for several months as my symptoms were a mix of gyneacoogical and urinary problems. As soon as they scanned me the problem was obvious though, so insist on a scan to see if endometriosis is causing secondary problems if you have odd symptoms.Good luck!










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