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My own endo story

Living everyday life with endometriosis!!

by catherine
(orlando)

I found out I had severe endometriosis at a very young age. I have the disease on all of my organs. I have had 4 different surgeries. All of my organs were glued togeather, and I have had several tumors, cyst, and a ruptered ovary.

I am now 28 years old and I am infertile and I wake up every morning with pain in my back, lower
abdomen, and my legs and arms. I have very painful periods and keep a notebook with all of my symptoms that I feel daily.


I don't have health insurence so getting help
to deal with endometriosis as been hard.




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Living everyday life with endometriosis!!

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Feb 02, 2012
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starstarstarstarstar 		I know how endometriosis makes you feel :(
by: Hannah

I was diagnosed at 17 with endometriosis. At first we started out with the birth control. I was on yaz and then seasonique. It helped for about a year and then I started Depo. The first 3 months were somewhat okay, and then the next shot I recieved, I had constant bleeding and pain.

The doctor said it was because my endo was so severe it was "eating through" the progesterone. SO, now I am on Lupron. I have injections once a month. It brings relief to the pain, BUT I am experiencing the same effects as menopause. Which, my mother finds some relief and humor out of it because she is also going through menopause at this time to! haha.

I'm not quiet sure that i like it though because I'm also experiencing depression, severe mood swings, nausea, hot flashes, and very bad night sweats. I'm considering getting off the shot and trying to have a baby.

I'm now 21, and engaged.. and seeking some sort of relief :( .. hope you are feeling somewhat better though! I know how much it sucks dealing with it and its hard to find a doctor that will actually work with you!
Jan 16, 2012
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starstarstarstarstar 		its life!!
by: Catherine

Hello Teresa,

Yes we do have Yaz here in America, but I am
on a injection shot for endometriosis that I have to get only once every three months called depro provera.

Here we don't go by stages for endometriosis, so I really don't know what stage I am. I do know that I have had the endometriosis since I was about eleven years old. I must also say that I knew that I was not alone in suffering with this disease, but I never had anyone to talk to that understand what I am feeling and dealing with so thank you all for being here.

My parents and my brothers did try to be helpful
and supportive but they don't understand, and often I feel bad because my dad seems to think that its is my fault I have endometriosis. Also his mom and sister had it.

But I know that it is something that no one can control. I have so many side illness caused from endometriosis that there are times when I just wish that they would remove all of my infected organs.

Well I wont keep you any longer, so again
be sure to ask about yaz.
Jan 16, 2012
Rating
starstarstarstarstar 		Medication for pain
by: Teresa

Hi Catherine, Sorry to hear that you have this terribile disease too. I also have Endometriosis stg IV and all of my organs were stuck together and I have had 3 operations for it.

I was given all the medications to stop it from growing but none worked. In the end, after my last operation I was put on the contraceptive pill which I take 4 months non stop. Then I have a period then go back on the pill again for another 4 months. The pill is called yasmin in this country but it might come under a different name in your country, but it is a pill that the doctors use for endometriosis and for pre-menstrual symptoms. Its the best medication that I have been given, not having any periods for 4 months at a time is brilliant.

In England where I live we luckly do not have to pay health insurance yet! and the pill is free. It must be terrible to be in pain and have to pay for health insurance to be able to get help. Anyway if it is possible to get the contraceptive pill then its worth a try. I do still have some symptoms but nothing like they were when i wasn't on the pill. Hope this helps, take care. Teresa

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