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My own endo story

I cant remember life before endometriosis

by Celine
(MI, USA)

The disease of endometriosis has turned my life into a nightmare really. It has been going on for so long that I cannot really remember what life was like before.

I have been fired from two jobs due to taking time off for sick leave. I currently have a job where I can work flexibly and from home as my duties are very computer based. But I have had to take a drop in salary, so endometriosis has affected my income.

Due to the amount of pain I suffer I do not socialize as much as I used to. There have been some nights when I have had to leave early and go home because of the pain symptoms of endometriosis that have come on suddenly.

My family are pretty supportive, but they do not fully understand what it is like to suffer all this pain. I think I am quite lucky with my pain levels, as I have read of some women suffering acute pain for most of the month, but mine is mostly when I have my periods.

As for relationships, well I do not even bother to go there now since I know that being intimate will cause me pain most of the time. Before my endometriosis got worse, I did have a steady relationship, but this did not last due to my ill health.

So endometriosis has affected just about all areas of my life. There is never a day goes by when I can forget it. It is always rearing its head one way or another. If I am not dealing with the symptoms of endometriosis, then I am having to consider things like when am I fit enough to do various tasks, what supplements should I be trying, how else can I look after myself. I just wish this nightmare of endometriosis would end




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I cant remember life before endometriosis

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May 11, 2012
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Life with endometriosis
by: Mandy

I really feel for you all. My experience with endometriosis is not a pretty one. I was diagnosed with endometriosis years ago, and have had several operations relating to it leaving me with adhesions.

My Gynaecologist advised me it was in my best interest not to have children because of the severity of the disease. Whilst for a lot of women it can help symptoms to be pregnant. For me i'm afraid, he said I would most definitely miscarriage, so me and my husband decided it was not worth the health risks.

Endometriosis is a crippling disease which I agree affects the immune system as I have also suffered lots of infections and fatigue. 9 years ago I was severely ill and spent 4 months in bed at home as I refused to go into hospital which I know now was the right choice.

I was consequently very ill additionally, suffering from an allergic reaction to medication. My husband is my inspiration as he nursed and encouraged me to get better. I can't thank him enough. Mandy. ILKESTON, Derbyshire, ENGLAND.

Jan 11, 2012
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I know exactly how you feel
by: Julia

Hi,

I totally understand how it feels to be dealing with endometriosis and how this disease can turn your life upside down. I have suffered from endometriosis for about 7 years and some days I feel totally overwhelmed with the depression and despair it has caused. But I keep picking myself up and hoping for things to get better.

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