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My own endo story

Extremely Painful Urination Symptoms :(

by Stephanie
(Baltimore, MD)

Fatigue, painful bowel movements, and painful urination are the worst symptoms of my endometriosis.

Urinating while I have my period is agonizing: I will purposefully avoid drinking a lot of liquids (which I know is terrible and unhealthy and can lead to other nasty things such as bladder infections) just so I do not have to urinate. It's terrible!

I was recently diagnosed with endometriosis and this is intense pain. The doctor prescribed oxycodone and valium for "pain management," but there is no way I can work (I'm a PhD student writing my dissertation) while I'm high as a kite on drugs (or while I'm nauseous to the point that I have to hang my head over the toilet because of the pain killers).

Does anyone else have the painful bowel movements and urination with endometriosis during your period? Any tips, suggestions? Does this ever get any better? I fee like I lose control of my life for about a week out of the month because of this. I cannot be on birth control or any hormone treatment really because I also have a problem with bad migraines and every form of bc I've been on seems to trigger them and drastically raise my blood pressure...




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Extremely Painful Urination Symptoms :(

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Feb 23, 2012
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starstarstarstarstar 		Painful urination and bowel movements
by: Anonymous

I am 38 years old and was diagnosed at 19 with endometriosis. Painful urination, bowel movements and intercourse were my worst symptoms in the beginning. It felt that when I urinated, it was my bladder emptying that was causing the pain.

After I had surgery and adhesions were removed, this symptom went away. If I recall correctly, my bladder had adhered to other organs. As far as the bowel movements, it was discovered during surgery that my "cul-de-sac" was completely obliterated. Surgery also helped fix this symptom for me. The painful urination never returned, but the painful bowel movements did. Subsequent surgery once again relieved the bowel symptom.

I would also experience pain (like a blunt knife up my rectum) when I sat down too fast/forcefully. It was awful but I no longer have that problem. I have had rectal bleeding during menstruation for the past 5 years. Fortunately, I do not suffer much pain anymore. I have/had stage IV endo, had left ovary removed in 07 (due to recurrent endometriomas), and have been pain free since '07 after my fourth lap surgery. I went to Dr. Albee in Atlanta and he used the laser as a knife to cut out rather than to burn the endometrial implants. I swear this was the answer!

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