Coping with Endometriosis
How do you cope with endometriosis when others do not understand you?
This is a dilemma most women with endometriosis face on a daily basis. To try and address this problem, which causes distress and isolation for every woman, the letter called ‘Survivor Letter’ was drafted which women could then show to others.
About the Letter:
Originally authored in 1997, the “Survivor Letter”, as it has come to be called over the years, has been distributed around the world and reached over a million unique readers as of this writing. It has been translated into other languages; reprinted in books; shared extensively across global patient communities; read to the crowd on the steps of the Lincoln Memorial in Washington, DC at the first annual EndoWalk for Awareness; given to families, physicians, caregivers, spouses, friends and government officials; and is currently used by patient advocacy organizations in the US, Europe and Australia to facilitate their efforts at raising awareness and validating those who live with the disease.
The Letter has been provided to give those around you a better understanding of what it is like to live with a chronic, painful illness that is under-treated, under-diagnosed and widely misunderstood – and perhaps, even, ignored - by society at large. More importantly, this letter is for all the Endometriosis sufferers around the world who hold their heads high everyday - in spite of endometriosis.
The Survivors Letter is now available as a pdf download direct from Endo Resolved.
To open and install the PDF file, please use these instructions:
PC users right click on the link and “Save Target As” or “Save File As”
Mac users will need to ‘CTRL/CLICK and then select ‘Download link to disk’
Most likely the file will default is download right onto your ‘desktop’.
After the download is completed, simply go to your desktop and click on the Acrobat file to open the file.
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