Personal Endometriosis Symptoms


Find out about the symptoms of endometriosis that are experienced by other sufferers ...

Read the accounts submitted below of the many and various symptoms of endometriosis that women deal with.

By reading of first hand experiences you can hopefully gain a better understanding of your own symptoms.

These are real stories, and they highlight the great variety of symptoms that this disease can cause. Some of the headlines may have been edited, as this may help to find a story similar to yours much quicker.


Share your experience of the most common or difficult symptoms with other readers

Have your symptoms totally taken over your life, or can you still cope? Share your own experience of your endometriosis symptoms.

Read what other women have said

Click below to see contributions from other women to this page...

Are my symptoms from endometriosis? 
Hello everyone, I am 22 and wondering if my unexplained gastrointestinal symptoms could be from endometriosis. During the past year and a half (and …

Listen to your body  
Hi, I haven't been diagnosed with endometriosis but after reading almost every single article, story and wiki pages about this I am convinced I have …

What is causing these symptoms? 
My story starts around 6 years ago. I was having a very hard time getting pregnant so I went in for a procedure a year later for the doctor to look around. …

Do I have endometriosis? 
I've been dealing with bad periods since if first began menstruating in the 7th grade. I am now at the end of 10th grade, so I realize that this is quite …

Symptoms of endometriosis in the cul de sac? 
Hi all, I'm a 22 year old rough and tumble college student and I am not the type to fret over the simple aches and pains that accompany being a lady. …

I possibly have endometriosis and would really appreciate advice 
I've always had extremely painful cramps, bloating, and fatigue with my periods. I never thought much of it even though in college I would honestly skip …

Lower back and rectum pain during menstruation 
I've been having pain during menstruation for years and I have really irregular periods. I was sometimes getting my period every 2 weeks, then I wouldn't …

Endometriosis and my story so far 
I have been struggling with Endometriosis and it's symptoms for two years now. I'm 21 years old and I've always been a healthy eater, athletic and full …

Itchy wrists as a symptom 
I was diagnosed with Endometriosis about 4 years ago. It's near my urethra so they couldn't laser it out. I was told to either get pregnant or take these …

Symptoms worse after eating and with stress 
Symptoms which are caused by minimal endometriosis: I suffer from on-going pelvic pain ranging from sharp to stabbing to dull pelvic pain. This is in …

Bloating is the worst endometriosis symptom  
As many of you have experienced, I had seen many doctors prior to finally getting the diagnosis of endometriosis. At that point, this doctor recommended …

Symptoms worse after nuvaring 
My symptoms of endometriosis are now worse after using the nuvaring. Ever since I started my period at 13, I experienced migraines, severe cramps, heavy, …

Pain and depression 
I was diagnosed with endometriosis when I was sixteen years old. My sister (who is 20 years older than me) was diagnosed years before me and it still took …

Main symptoms are pain and nausea 
I was just diagnosed with endometriosis. I have MS and was wondering if anyone in this group has any other disease besides the endometriosis. I think …

Symptoms of headaches and tiredness 
I was diagnosed with Endometriosis last year but I had been having problems way before being diagnosed. I just thought it was part of being so busy …

Chronic pain 
For the last 3 months I have been suffering with severe lower back aches and lower abdominal cramps that really hurts when I move and cough or sneeze. …

Debilitating pains of endometriosis 
My endometriosis story all started a very long time ago. Looking back on my life, it seems so crystal, so inevitable - but at the same time, I have …

Confused and in pain 
My endometriosis story: I'm a 19 year old female, a daughter of a victim of severe Endometriosis (bounded her reproductive organs, bladder, bowel, pelvic …

Are these symptoms endometriosis 
I have lots of symptoms that make me feel like it could be endometriosis. I am 16 and about 2 years ago I got extremely severe period pains that began …

Stress caused by endometriosis 
When I first got married I was 20 and shortly after I was having horrible pain on my left side one night. It was so terrible my husband took me to the …

Reduce symptoms and eat less white flour  
I too have endometriosis (16+ yrs) and the way I keep it at bay is to cut out any or most white flour/wheat products! I have noticed tremendous decrease …

Endometriosis affecting bladder 
Because of endometriosis I feel extremely tired all of a sudden, so that one minute I'm fine, and the next I find myself asleep on the couch. My pain …

Endometriosis on the kidney 
Endometriosis symptoms that I have suffered - I had extremely painful periods with back and groin symptoms that gradually disappeared when I stopped …

Symptoms so bad unable to walk 
My pelvic pain with endometriosis is constant most of the time and I'm bent over in pain. I hold out my underwear away from my stomach because even …

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Symptoms worse with stress and certain foods 
I have noticed a link between my symptoms and what I eat. I have had endometriosis since I was 12 years old which was when my periods started, I didn't …

Painful urination symptoms  
Fatigue, painful bowel movements and urination are the worst symptoms of my endometriosis. Urinating while I have my period is agonizing. I will purposefully …

Bladder endometriosis 
It all started with what my urologist thought was a bladder infection (which I had never had). When it was confirmed I didn't have one, he decided to …

Endometriosis pain in tail bone  
I've had 2 operations to remove endometriosis now and am positive it's come back. The last 2-3 years my pain and periods have changed a lot. The last 4 …

Stage V endometriosis 
I was diagnosed with endometriosis age 30 after debilitating cramps and fever landed me in the ER, where doctors performed an emergency laparotomy to remove …

Pain is never okay!  Not rated yet
I first heard about endometriosis from a friend in high school, but it seemed like a serious disease and it's normal to be in pain during your period. …

Intense Rectal and Abdominal Pain Not rated yet
I've not been officially diagnosed with endometriosis, but I have been doing a ton of research on it ever since discovering such a disease exists. …

Still searching for diagnosis Not rated yet
My symptoms began with a very painful sexual experience. My husband and I had to stop having sex and the pain was so bad I felt like I might pass out but …

Suspected Endo but Clear Laparoscopy?  Not rated yet
I started having SEVERE periods around age 14-15 (started my period at 12) and finally at 17 I sought treatment for what my mom thought was endometriosis. …

Fever with my period Not rated yet
For months I had a mysterious fever (along with extreme nausea and/or vomiting, splitting headache and sore throat feeling) with my period. It took a while …

Years of no answers and pain is making me feel crazy Not rated yet
Since the age of 14 I have always had severe cramping and heavy cycles. Lasting anywhere from 7 to 13 days. Being unable to move or function and being …

Going to doctors to check for endometriosis Not rated yet
I am 17 years old. I have had my period since I was 12 and it started getting bad at 14. My period lasted 9 days and I would often accidentally overdose …

Diagnosed with Endometrioma in 2013, severe pain the last week Not rated yet
I was in and out of the Emergency Room back in September/October - December 2013. I was diagnosed with bi-lateral cysts, the one in my right ovary being …

Not sure if I have endometriosis, but a little scared... Not rated yet
Although I consider myself relatively healthy, there are some symptoms I experience that I am concerned may be connected to endometriosis. I have …

I have no idea what this unbearable pain is?  Not rated yet
I've been experiencing extreme fatigue and muscle soreness in my legs, knees, upper thighs and what I think is the sciatic nerve, and my back, neck and …

Relentless symptoms Not rated yet
Hello, I am very new to the site and have posted my story but really would like some insight from other endometriosis sufferers.. outside of my family. …

My Pain is worse in the morning and at night Not rated yet
I am 17 years old and have been experiencing endometriosis pains ever since I was nine years old. I have not yet been diagnosed but I found out about the …

My symptoms significantly improved drinking 4 cups of tea a day Not rated yet
I began to have bowel problems after delivery of my child at the age of 42. I had always been on birth control prior, but after the babies birth I was …

Chronic right pain & bowel problems Not rated yet
I started my periods when I was 11, I don't remember them being painful (but how do you know what is a normal period?) As a teenager I've always been light-headed …

Possible Endometriosis? - diagnosed as "dysfunctional" Not rated yet
I am 21 years old and have been on 10 different types of birth control over the last 3 years- none of which have worked. Even "dangerous" amounts of hormones …

Symptoms vary with activity and mood Not rated yet
My endometriosis symptoms include: * pelvic pain * mood swings * bloating * chest pain * shoulder pain * fatigue * fevers * pain during intercourse …

Some coping mechanisms that may help others Not rated yet
I have now been diagnosed with Stage 4 endometriosis. Here are some of the things I find helpful to do, although I appreciate they may not work for everyone. …

Totally debilitated by endometriosis Not rated yet
I remember back in high school, that my pains would be so severe that i would have to miss classes. As years went by I thought it was normal. I had two …

Stitch-like pains in ovary areas and extreme bloating Not rated yet
I decided to see my GP after reading information on the signs of ovarian cancer and realising I had a lot of the symptoms listed; I wasn't panicking over …

Diagnosed fibroids not endometriosis - I wonder! Not rated yet
I am over 50 years old, a woman who has never been pregnant now going through menopause. I have always had super heavy periods and clots. Had some things …

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Looking for advice from your past experiences Not rated yet
Probable endometriosis been mis-diagnosed as Crohn's disease I have not been diagnosed with endometriosis, but have a suspicion that it could be my …

second surgery for endometriosis Not rated yet
Considering having a partial hysterectomy because of endometriosis I've been dealing with endometriosis since I was 16 and I was diagnosed at 20 with …

Tired all the time with sharp pains in pelvic area Not rated yet
I'm 28 years old. I was diagnosed with endometriosis in 2011 after many painful periods, so bad that my blood pressure would drop and I would end up in …

Symptoms of infertility, extreme bloating, pelvic pain and leg cramps Not rated yet
Menopausal and still suffering with endometriosis Looking back I realize now - pretty late in the game being I'm now middle aged - that I never, ever …

Experience with Endometriosis Not rated yet
Query about endometriosis and gall bladder problems My pain symptoms started three months ago in my kidney area where I was experiencing flank pain. …

So many questions about symptoms Not rated yet
I went to the gyno last summer for a regular pap and they found cin3 dysplasia and I had a follow up colposcopy. In September I had a leep done and …

Second laparoscopy and information on endometriosis diet needed  Not rated yet
I was diagnosed with endometriosis officially start of last year (2012), although I already knew I suffered from it. My mother had it, and even though …

Diagnosed stage 4 endometriosis  Not rated yet
Kelly has recently been diagnosed with Stage 4 endometriosis and feeling very distressed, which is understandable. Where do I start?, I am 37 …

Should I return to specialist Not rated yet
Have seen two specialists and now concerned. About a year ago, my doctor found a cyst (6.5cm) on my left ovary which I had removed. At the same time …

Should I have a laparoscopy Not rated yet
I am 23 and just looking for some advice about endometriosis or anyone with similar stories? I have been on the contraceptive pill since I was 15. …

Constant pain symptoms all day  Not rated yet
My symptoms of endometriosis have been so bad have had to go to ER. I have been reading through some of the stories on this site and have been taken …

Endometriosis you are not alone.  Not rated yet
I am a 21 year old female and I was diagnosed with endometriosis and interstitial cystitis or IC in 2010 through an exploratory laparoscopy. I went …

3 weeks pain each month Not rated yet
I am 16 years old and I live with endometriosis pain quite often, even in school. It makes it hard to keep focussed on my work or concentrate in class. …

Pain in pelvis Not rated yet
I am a sufferer of extensive endometriosis found in fallopian tube previously removed. Ended up losing both due to damage and furring up. Lots of …

Adhesions fibroids and cysts Not rated yet
I have been told I have endometriosis, this was 19 months ago, have had three internal scans, three ultrasounds, a colonoscopy, and an mri, have to go …

Endometriosis returned after child-birth Not rated yet
Diagnosed with stage 4 endometriosis .... I started suffering at the age of 19 with very heavy periods, within 6 months I was being took home from work …

Endometriosis and chronic fatigue syndrome  Not rated yet
I have had endometriosis for 22 years. 16 years ago I got diagnosed with Chronic Fatique Syndrome. I haven't been able to work for four years now and I …

Doctors not helping with pain Not rated yet
Concerned these symptoms are endometriosis. I've been trying to get the doctors to do something about my abdominal cramps for about 2 years now. I'm …

Living hell every two weeks Not rated yet
I have always had a problem with my periods. I didn't start them until I was 16 and then every time has been like a miscarriage for the first few days. …

Symptoms not taken seriously - often misdiagnosed Not rated yet
I had a hysterectomy, oophorectomy and removal of many egg-sized cysts associated with endometriosis For years I have complained of severe "tailbone pain" …

Finally found doctor who knew about endometriosis  Not rated yet
Years of my life wasted because of endometriosis and being female... For years I have been going to doctors to tell them I was having days off school, …

Endometriosis symptoms give me answers Not rated yet
I have been searching for answers for a while now, I have had painful periods since day one (12 yrs) and always thought it was normal. Every now and …

May have endometriosis need answers Not rated yet
Advice needed for possible endometriosis. I am a 27 year old, mother of three children. I have had my tubes tied twice within the past three years. …

Lots of symptoms Not rated yet
I was "diagnosed" with endometriosis by a doctor who simply was doing a vaginal exam for constant, horrible cramps linked to menstruation. He said he felt …

Symptoms gradually getting worse Not rated yet
I was diagnosed with Endometriosis at the age of 17 and I will be 38 in July. I have suffered so bad for 2 yrs with this terrible disease. I always felt …

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MRI scheduled symptoms are baffling Not rated yet
I have deep penetration of endometriosis and have very strange symptoms. My pain is very specific and very intense. It's getting progressively worse …

Right pelvic pinching symptom Not rated yet
My symptoms of endometriosis appeared to start many years ago after an ectopic. I was told for many years I had IBS because of bowel, bladder and pelvic/stomach …

Immune system depleted with endometriosis Not rated yet
Start of symptoms of endometriosis: I am almost 30yrs old, and I have a 2yr old. A year ago I was running 2hrs/day at least, 3-4 times/wk, with the …

On the depo shots but still in pain Not rated yet
I'm in the process of being properly diagnosed with endometriosis. I'm 21 and have had all sorts of problems and many symptoms. I started my periods …

Helpful advice for symptoms Not rated yet
I was diagnosed with endometriosis in 2002 when I had my first surgery and removed my right ovary. I was 26 at the time. Through the years the symptoms …

Stabbing pain symptoms in lower abdomen  Not rated yet
I have severe stabbing sensations in lower abdomen due to endometriosis. I don't remember ever having problems with cramps during my periods, since …

Rectal bleeding and abdominal pain symptoms Not rated yet
I think I have endometriosis but cannot get a diagnosis from doctor. For the last 3 years I have had sharp cramps in my lower abdomen, specifically …

Suffering from Endometriosis and IBS found relief Not rated yet
This has helped my endometriosis and IBS symptoms ... I'm not typically a poster, but in hopes that I help one person, I had to share. I have been …

All these symptoms were endometriosis Not rated yet
Because of endometriosis I have gone through so many procedures and surgeries, too numerous to list here, but the end result is it is all endometriosis …

endometriosis destroying immune system  Not rated yet
Where to begin with my experience of endometriosis? I've had painful heavy periods from the beginning. The doctors told me I was crazy and that I didn't …

Do you have similar symptoms Not rated yet
I am 19 years old and was diagnosed with Endometriosis last October when doctors suspected my symptoms were due to appendicitis. It was my second laparoscopy …

Need answers not diagnosed  Not rated yet
I do not know if I have endometriosis yet as I have not been diagnosed, but I am concerned with my symptoms. I am 21 yrs old, 2 children, and I have …

Dreadful digestive symptoms Not rated yet
I get really bad symptoms with my diet causing many gastro problems. Since the age of eleven I have had really bad periods and I would be curled up …

Symptoms improving with diet Not rated yet
I have only recently been diagnosed but definitely have noticed that certain foods make it worse. I would really like to say thanks for the advice I have …

Disabling symptoms Not rated yet
Endometriosis started when I was 16. I would get so sick during my period that I would miss 3 days of school. My mom would tell me there was no way my …

Not sure about my symptoms Not rated yet
My personal endometriosis symptoms include: The week before menstruation I suffer shoulder pain, nasea every day almost all day, diarrhoea starts, …

Natural treatments and reduced symptoms Not rated yet
As many others have written, I had very painful periods as a teenager, but everyone said it was normal. I got married when I was 22, went on the pill immediately. …

Improvement of symptoms with diet Not rated yet
My endometriosis symptoms used to be very, very painful with my periods and at other times of the month as well. I would feel sick and nauseous before …

Answers to my pain symptoms  Not rated yet
Suffering extremely painful periods, with a long time to get diagnosed with endometriosis .... Ever since I got my first period at age 13 I have suffered …

Severe symptoms Not rated yet
I was diagnosed with severe endometriosis (stage 4) on November 2011. I am 30 years old and starting having symptoms since I was 19. When I was a teenager …

Symptoms every day Not rated yet
I found out I had severe endometriosis at a very young age. I have the disease on all of my organs. I have had 4 different surgeries. All of my organs …

Symptom of pelvic pain Not rated yet
I had symptoms of extremely intense cramps when I was young and during the first years of having my period. This seemed normal to me, being that my mother …

No pain symptoms Not rated yet
Diagnosis of endometriosis but no symptoms I went in to see the doctor but I had no symptoms of endometriosis. I wanted to check to see if my Mirena …

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