Personal experiences of living with endometriosis


Personal experiences of life with endometriosis that are experienced by other sufferers ...

Read the stories submitted below of the various effects that living with endometriosis has on a women's life and those of her loved ones.

By reading first hand experiences from other women and girls, you may gain a better understanding that what you are dealing with is not unique and that you are not alone.

These are real stories, and they all seem to focus on the deep impact living with a disease like endometriosis has on their lives. Some of the headlines may have been edited, as this may help to find a story similar to yours much quicker.



How has endometriosis affected your life?

Share with readers the different ways endometriosis has impacted your life, your family, your career, your social life and so on.

Enter Your Title (ex. Endometriosis has changed every aspect of my life)

What other women have said

Click below to see contributions from other visitors to this page...

Stage 4 endometriosis  
I am so excited to have found your endometriosis site. I've been going through a rough patch, and was so happy to have received the invitation to join …

Free of endometriosis and so greatful 
I promised myself my story here would be a "success story" and here I am! I don't have any special powers, I'm just a woman like all of you, but I understand …

Endometriosis stage 4 
I have been suffering with this awful pain symptoms of endometriosis. My gyno put me on an injection but I cannot stay on it as it makes your bones week. …

Endometriosis is Ruining my Life 
I was diagnosed with stage 2 endometriosis in December of 2011. My name is Allison and I am 17 years old. Ever since I was first diagnosed, my life …

Endometriosis stolen my life made worse by Lupron 
I suspect I have had endometriosis since I was 13. However it took 12 years to get an actual diagnosis. I have seen every ob/gyn in my local area. All …

20 years old and miserable because of endometriosis 
I experienced an ovarian cyst burst March 1st, 2011. Since then I haven't been the same. I've always had terrible periods, lasting 7-10 days on average. …

Edometriosis sucks !!!!!!!!!!!!! Not rated yet
After suffering since age 9 with excruciating cramps my Dr finally decided to look into why I'm constantly in so much pain. I am now 19 and was diagnosed …

Endometriosis - Wondering What Will Happen Not rated yet
I am 17 years old, having been diagnosed with Endo at 16. As far as I am aware, this is a relatively young age to be diagnosed. I began having a stabbing …

Endometriosis has impacted my entire life Not rated yet
I finally feel normal again! I am 51 years old and have suffered from the symptoms of endometriosis since I was 14 years old. My periods were always super …

Accepting who I am Not rated yet
When I had my first period at the age of fourteen, I thought I was dying. For a whole two days I was in agonizing pain while my family watched from the …

Will I ever get my life back? Not rated yet
Hello everyone! I am 31 years of age and I have been dealing with this for as far back as I can remember! I cannot tell you how many doctors I have seen …

"Chocolate Cyst" Not rated yet
I had not intended to get pregnant however I embraced knowing I was the moment I found out. I quickly purchased the "what to expect when you're expecting", …

Living with the disease no one understands Not rated yet
I always had painful periods. My mom and dad figured I was a hypocondriac. I did too. I started at the age of 10 and, by the time I was 17 I was bleeding …

Hope I will overcome endometriosis Not rated yet
Well it all started in 1999, my periods would be so painful to a point where I had to stop walking when I felt a sharp pain, same as the ovulation. …

Symptoms of Endometriosis for years and undiagnosed  Not rated yet
I am 43 and have suffered I believe with the symptoms of Endometriosis for years. I fell pregnant and miscarried at the age of 17, I was in agony I didn't …

Endometriosis has turned my life from bad to worse Not rated yet
I think I've had endometriosis since I was 12 years old. It started with constant heavy bleeding and pain symptoms. For years I didn't find it to be …

Trying to function with endometriosis Not rated yet
I am a 36yr old mother of two, I have had 5 surgeries due to endometriosis since May of 2010, including a partial hysterectomy. My most recent being …

when will this stop. Not rated yet
I was diagnosed with endometriosis when I was 23. My symptoms started when I first got my periods at 13. Very painful periods where I used to vomit and …

Affects of Endometriosis Not rated yet
Endometriosis has made Liza more assertive .... Endometriosis has most definitely affected every aspect of my life. Emotions, relationships, work, …

7 years finally diagnosed with endometriosis Not rated yet
8 years ago, During 2005 I started spotting about a week before my period. This scared me as I had a friend who had recently been diagnosed with cervical …

Endometriosis makes my life horrible. Not rated yet
I have always had heavy unbearable periods since I was 13 that would last weeks into months at a time. I used to lock myself in my room and take 3 ibuprofen …

Endometriosis ruined life  Not rated yet
I was suffering from severe cramps to the point of passing out and waking up in hospital not knowing what was wrong. This happened for 3 years solid. …

I just want to escape from endometriosis Not rated yet
Not a day goes by that I am not in some sort of pain because of endometriosis. From the moment I wake up, til the moment I go to bed I have painful symptoms. …

Angry & frustrated with endometriosis Not rated yet
I think I had endometriosis at a very young age, near the start of my periods. I was once diagnosed with poly-cystic ovaries as a teenager. A doctor trying …

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My personal story of endometriosis Not rated yet
Like many of the women here I suffered with the pain and symptoms of endometriosis for years, actually for about 15 years, and I'm only 28 as I write this …

Went through hell for 8 years because of endometriosis Not rated yet
Because of endometriosis the last eight years have been hell. Well for a start the pain all started in 2004. They kept telling me infections, blah …

In need of help & in so much pain! Not rated yet
I have been suffering for many years with endometriosis! The doctor did not diagnose me with it until my doctor retired and a new one took over his practice. …

Endometriosis or kidneys crisis/infection (pielonefritis) ? Not rated yet
I just got out from a horrible crisis that was excruciating ! The pains started in day 15 and keep me on this day 19 today when I am already feel better... …

Failed treatment and pain of endometriosis never ends.. Not rated yet
Moderate to severe endometriosis: I remember before I started bleeding I could have even been 11, occasionally I would wake up during the night with …

My fight for reproductive rights. Not rated yet
I am thirty years old and I have struggled with endometriosis for over half my life. My first experience with pelvic and abdominal pain was at a very young …

Stage 4 endometriosis trying 5 years to get pregnant Not rated yet
I was told to have laparoscopy surgery and we thought yes that will help me solve the problem. Endometriosis came back 6 months later so we were referred …

Pain is so bad it effects every aspect of my life Not rated yet
Now 42, I have been suffering with heavy periods since I was a teenager. I was diagnosed with endometriosis about 15 years ago ... although my symptoms …

Endometriosis at 23 and struggling with life Not rated yet
Since I got my first period at age 11, I have had very painful periods that lasted for the full 7 days. During the first few years of my period I was abnormal. …

How my life has been affected by endometriosis Not rated yet
I am 23 now but when I was diagnosed with endometriosis when I was 18 and had been suffering since my period first started when I was 10. I saw several …

This endometriosis pain is all I've ever known! Not rated yet
Undiagnosed endometriosis symptoms for years ... I had my first period when I was 9 years old. I have always had extremely bad periods. I thought …

What happens when the door is shut? Not rated yet
I have stage 4 endometriosis. During my first laparoscopy my doctor couldn't even find my overies they were so tangled up in scar tissues, and hidden underneath …

A long journey to the truth about endometriosis .... Not rated yet
I am almost 21 years old and was diagnosed with endometriosis about 6 months ago. I've always had gyno related issues. I am a student at NIU and my …

Living with Endometriosis for 13 years Not rated yet
I started having extreme pain with my periods almost from the time I started having my periods. I was 13 when I started going to the doctor for it, and …

"Invisible pain" is the best way to describe this. Not rated yet
My name is Rebecca and I've had horrible periods ever since i could remember. When i did get my period i couldn't move, couldn't go to the bathroom because …

Let my voice be heard Not rated yet
Age 9, that time came for me to start womanhood. My period had begun. Of course being such a young girl and not having the official talk yet I had no idea …

My faith helped me and finally become pregnant Not rated yet
I was 26 years old when I found out that I had endometriosis. It happened when I had to go for an emergency appendix removal, when the test came I was …

Endometriosis - the discovery  Not rated yet
I am so glad everyone is sharing their stories of endometriosis. Your openness has helped me so much. I have had painful periods since I was 13. I …

Endometriosis, lupron, lap surgeries, birth control pills Not rated yet
I didn't discover I had endometriosis until I was 32 years old and it was when I was in the middle of teaching a high school class when a cyst ruptured …

Endometriosis has stopped my normal life  Not rated yet
I am 17 years old. Last October after my 10th grade homecoming, I began to have severe back and abdominal pain. My mother first thought that something …

Confused, doesn't feel normal. Not rated yet
I am a 32 year old mother of one daughter. I've read so many stories about painful periods, heavy periods etc. But I haven't had that. I've felt my symptoms …

This disease has ruined my life Not rated yet
Because of endometriosis I started having very painful periods at age 31. Was taking 15 advils a day. Finally saw a Dr. and was diagnosed. Endometriosis …

Endometriosis has stolen my 30's  Not rated yet
Endometriosis and how it has affected my life. I always had a strange cycle. I did not start my period until I was 17. My mom took me in, because she …

Another day with endometriosis Not rated yet
I am sitting at home again today because I have endometriosis and I hate to feel like I do today. I can normally find ways to feel happy and accept …

Nightmare of endometriosis and cruel treatment by doctors Not rated yet
Who knew there could be so many thoughtless, cruel, insensitive, arrogant, ignorant Dr.s? I’ve had them all! I‘ve been more dead than alive for 6 years. …

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Endometriosis - Where it all started. Not rated yet
Endometriosis and where to begin. It all started when every month I was very, very sick. Throwing up, diarrhea, etc, all of those lovely symptoms. I ended …

Endometriosis and living with it Not rated yet
I've been living with endometriosis since I was 13 and I am now 22 years old. I was finally diagnosed in 2010 after being hospitalized for what they thought …

I have Adenomyosis - endometriosis of the uterus Not rated yet
I am 35 years old and was diagnosed in 2005 after a myomectomy (uterine surgery). Of course I was ignored for many years before and then misdiagnosed …

Interested in the diet connection for endometriosis Not rated yet
I was diagnosed with endometriosis in my 20s. My symptoms were very heavy, painful period and very irregular cycle. I often bled in the middle of my …

Beyond frustrated with doctors Not rated yet
For several years now I've been dealing with symptoms that point to endometriosis. My husband and I have gone from doctor to doctor trying to get them …

People treat you like mad, as if you are pretending Not rated yet
Because of endometriosis I would frequently blackout due to pain, I had non regular periods, and strong pain till the day I was waiting for every for hours …

Endometriosis has destroyed my life Not rated yet
I first started getting symptoms when I was 14, they started getting worse around age 16. At age 17 my life was screwed up by this disease and has been …

Endometriosis has taken over my life Not rated yet
I have had chronic endometriosis symptoms including severe cramping during and after menstrual cycles to rectal pain & diarrhoea. It began so aggressive …

Endometriosis or Autoimmune? Not rated yet
I will start with my symptoms - Let me start off by saying last year at this time I was having a lot of pain. I had pulling pains, painful intercourse, …

Diagnosed with endo can take charge of my own health Not rated yet
My health changed drastically after my first child, Devin was born. I have always been very healthy, the type that rarely got sick. When I finally started …

Just diagnosed & learning the reality Not rated yet
I have just been diagnosed with endometriosis. For the past 5 years, I have dealt with severe pain with my menstrual cycle, as well with a steady pain …

Severely altered my teenage years.. Not rated yet
Ever since I got my period back when I was 9 years old I have dealt with horrible cramps. I was the girl who started developing before any of the other …

Not diagnosed with endometriosis yet.... Not rated yet
For the past year or so, I have experienced many symptoms that my GP tells me are normal, but they really don't seem to be, and I am only 14 year old. …

Endometriosis has totally changed my life Not rated yet
I have been suffering with endometriosis since the tender age of 13 and wasn't diagnosed till I was 19. My name is a Vanessa and I am now 26 years old. …

Endometriosis and the changes in my life Not rated yet
I was diagnosed with endometriosis just as I was leaving college and hoping to embark on a career. It hit me very suddenly and not like some women whose …

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