Endometriosis on spine

by Aylin
(Beijing, China)

I just passed a horrible crisis, the most horrible I ever had. Started after ovulation process was stopped. Started with a moderate pain of cervical area ( nothing unusual for me as for years had cervical spinal pains when weather changed or for other conditions).

I started to take anti-inflammatory pills but with no help. I had a fever of 37 every day and 37.5. The pains of cervical area to the middle of my back was very bad that I did not sleep for 5 nights. I was only able to sleep on my back position without a pillow under my head.

I just kept my calm and was waiting to see what happened. I also started antibiotics because I had ( as a coincidence) a sinusitis that smell bad. I thought all the pains are from sinusitis, but not! I notice that no medication has any effect over that pain and today, when I got my period, all the pains stopped!

I realised it is endometriosis on the spinal area....... I never thought I will have it there too... This after happened 2 years ago another problem of spinal area, but on the lumbar region and I thought it was a violent disk hernia, but again, on MRI, doctors saw nothing !

I had excruciating pains at that time on the lumbar, unable to walk for almost 3 months. It was happened only one time, thank God and I hope this time was only the single time for cervical area. I am afraid what will be next ???

I have not had a Hysterectomy and I would never agree with it. Many people tried to convince me to do it at 28 years old, but I didn't! I am 33 now, not married and I hope to have a child in future if it will not be too late, God knows.
.
Wish you all good health and be calm with this illness... It is a long way we have to walk on until we reach natural menopause...

Comments for Endometriosis on spine

Average Rating starstarstarstarstar

Click here to add your own comments

Oct 02, 2015
Rating
starstarstarstarstar
Endometriosis in whole body
by: Anonymous

I have had endometriosis since I was 13, was so bad at one stage they said I would never carry a baby. Thankfully I carried 2, but I had to have a hysterectomy straight after 2nd child. But due to extent of the endo they could not get the ovaries or cervix, these where completely covered.

I have suffered from back pain ever since, and 15 years later my abdomen is completely covered in scar tissue and endo. After reading this it sounds like the endometriosis is also in my back. I hope you manage to get something done

Dec 06, 2014
Rating
starstarstarstarstar
How did you find out endometriosis was on the spine
by: Elizabeth

How did the doctors find it on your spine. What test or process did they use to get to that DX. And did they do anything for the symptoms related to the endometriosis on the spine.

Nov 13, 2014
Rating
starstarstarstarstar
Empathy
by: Anonymous

I am so sorry for what you are going through. I am sat writing this from my bed where i spend most of the day because walking is like walking on glass for me, pain radiating from my lower coxic down. Ten years on and treatment following treatment during which time I've been diagnosed with Social anxieties, pituitary disorders etc etc.


I am looking into hysterectomy because if there is a chance it will work, even a small chance I'm prepared to get my life back. I am adopted myself, my mother sadly couldn't have kids either, so I hope this will be a route I can take too.

Oct 17, 2014
Rating
starstarstarstarstar
I am the same - how are you today?
by: Mickey

The same story like you word by word did you do the spinal surgery?

Apr 15, 2014
Rating
starstarstarstarstar
Endo on spine??
by: Anonymous

Hi,

I feel similar. I have a very hard time walking and I was diagnosed with endometriosis through a laparoscopy. Not sure if they checked my spine. How did you solve your problem??? I still feel pain and have a hard time walking.

Oct 19, 2013
Rating
starstarstarstarstar
God bless
by: Anonymous

May God continue to bless all with endometriosis. Only those with it will understand the pain. You're not crazy! Stay strong.

Click here to add your own comments

Join in and write your own page! It's easy to do. How? Simply click here to return to Your hysterectomy experience.




Follow us on Facebook

Recommend on Google+