Endometriosis diagnosis took almost 2 months

by Megan Israels
(Grand Rapids, MI)

I have had severe pain with endometriosis on and off since October 2011. My first trip to the emergency room, I was discharged with no causes or diagnosis.

After 3 months of back and forth between the doctor, emergency room, and specialist, I had my gall bladder removed. In the beginning of January 2012, I began feeling almost the same pain, except lower than the rib cage, because I didn't want to go through it again, I ignored the pain, but two weeks of steady and increasingly worse abdominal pain, I went to my primary care who informed I have a UTI.

After a week of continuing pain, as a UTI has never made me feel so much pain, I went to the emergency room as I continually kept passing out or vomiting.

Due to so much inflammation on my right side, the surgeon was not able to determine if I had appendicitis, or chrones disease possibly, therefore he sent me to an internalists who ruled out appendicitis (as I still had an infection) and a cyst on my right ovary.

The internalist suggested that I go to an OBGYN to get checked for possible Endometriosis. After all the tests performed in the hospital, the doctor called me and asked that I come in three weeks earlier than my doctors appointment.

When I arrived at the doctors office, they informed me that I do have endometriosis and they are going to perform a laproscopy to find out the extent of what stage I am in.

I have always had womanly issues since I began my period and my mother and my grand-mother both have endometriosis.

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Dec 13, 2015
You are lucky!!!!!
by: Anonymous

On average it takes 8-10 years to get diagnosed in the US. Took me 10 years of suffering ER visits and uneducated doctors. I'm sorry for your suffering but be happy because it could have been so much worse.

I also have GI issues and liver issues on top of my OB issues. Doctors are dismissive and women all over the world suffer (not just here). It's a systemic disease that involves both the immune and endocrine systems. I hope you have found a physician that stays up to date with current research, they have learned a lot over the last 15 years to help women in our position but it's up to us to stay educated and use our voice when the treatment we are receiving is WRONG.

As a nurse myself this has motivated me to advocate for women who are being told this is all in our heads. If you are interested in any educational reading material I would be more than happy to give you some recommendations. Stay strong

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