Endo returned after 1 year...

by HS
(OKC)

My endo story began when I was a teen. After being placed on birth control to try to control the long periods, cramps and heavy bleeding - all the doctors thought I was making up the pain.

Several trips to ER thinking I had appendicitis. Each visit I would take a sharpie and circle where I was having pain. Doctors thought I was crazy but I needed something to document what I was going through.

I never had appendicitis, I was always sent home, again with the doctors not believing I was in pain. I spent years going to gastro doctors, test after test with the final diagnosis being IBS. My pain subsided in my 20's and I had no problems getting pregnant twice.

After reading so many stories from other women, I know this was an absolute miracle. After about a 10 year silence, the disease started to show itself in very sneaky ways. Chronic bladder infections, sore breasts 24/7, heavy periods that would come about every 6 days and last 4 days. Hemorrhoids and constipation were the worst!

Through all of this I really didn't have any cramps or much pain, just an inconvenience. Once the pain hit I truly did not know what to do. I woke up in the middle of the night screaming in pain and it just didn't go away. It kept intensifying. My obgyn thought I had a cyst that burst, even though the ultrasound didn't show evidence of this.

The tiny cyst he did find didn't explain the amount of pain I was in. After 4 months of this he did a lap surgery to determine what was going on. In the process he removed a massive amount of scar tissue, a cyst and did an ablation. He said I definitely had endo and adenyomyosis and that my organs were bound together and in the wrong places.

The relief I felt when he told me the news was overwhelming. For someone to solidify that I actually had an issue was amazing. So we made a plan and he assured me that the ablation removed everything.... Well, as we all know ablation doesn't do the trick!

6 months later I had a total hysterectomy and to this day do not regret it. Yes, I am on HRT and yes my endo came back after 1 year but even in the absolute pain I am in now, that doesn't compare to the pain and issues I had before the hysterectomy.

It is night and day for my situation. I have since had another surgery to remove more endo and scar tissue from my organs and 6 months later I am still in pain contemplating another surgery. I have switched doctors and found a specialist that is helping me with the right HRT formula.

It is just a very slow going trial and error process. The bad part is that once the pain starts, I do know how to get rid of the pain without surgery. Once it is triggered it is full blown (for me anyways).

I struggle with thinking that I will never be pain free and that I am always going to in a way be walking on eggshells with my endo. I am good for 6 months but if I take to much estrogen one day, then BAM I am back fighting with it..... And it always seems to win...

Click here to post comments

Join in and write your own page! It's easy to do. How? Simply click here to return to Your hysterectomy experience.




Follow us on Facebook

Recommend on Google+